Yesterday (Wednesday, 4 July) David Ramsden, the Trust’s Chief Executive and Lynsey Beswick, the Trust’s Public Affairs Manager, who has cystic fibrosis (CF), met with Jeremy Hunt, the Secretary of State for Health, to discuss the issue.
At the same time, NHS England met with pharmaceutical company Vertex as part of a series of meetings to find a resolution so people living with CF can access new precision drugs.
However, following statements from NHS England and Vertex this morning these discussions appear to be at an impasse.
In response to these statements, David Ramsden said: "We are appalled and deeply frustrated to receive Vertex and NHS England’s statements.
"People with cystic fibrosis and their families have fought hard to get these medicines. After years of being forced to wait, the CF community will simply not accept either party walking away from the table without striking a deal and we will all stand together.
"Vertex and NHS England must get back around the table quickly and ensure these medicines are made available to people with cystic fibrosis.”
Read the statements from NHS England and Vertex.