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Cystic Fibrosis Trust
Forum

Head of Philanthropy

Circa £50-£55,000 plus benefits and flexible working

Based in Central London


The Cystic Fibrosis Trust is fighting for a life unlimited for everyone affected by the condition. Our mission is to create a world where everyone living with cystic fibrosis will be able to look forward to a long, healthy life.

The Cystic Fibrosis Trust has a fundamental story to tell, a story of a devastating genetic condition and the fight to lift the limits people with cystic fibrosis (CF) currently face. It’s the story of a mission to create a new future where everyone with cystic fibrosis can live a life unlimited by their condition.

The charity is at an exciting time as we prepare to take our fight further and wider than ever before. We’re campaigning to put cystic fibrosis on the government agenda and to raise awareness of CF around the country on a local and national level.

It is an exciting time to join the Trust and make a real step change in our income from Major Donors and Trusts as part of our overall fundraising strategy. You will be responsible for developing the strategy and leading the team to deliver real growth from the Philanthropy team over the next five years to increase our impact for people with cystic fibrosis, in addition to leading on developing new relationships with donors. We have a really vibrant cystic fibrosis community who support fundraising through events and their networks, and also engaging projects, including our exciting Innovation Hub with the University of Cambridge with the target of raising £5 million over five years, which is providing a great opportunity to engage new trusts and major donors.

A team player with significant experience in securing significant income from major donors and developing long term relationships. Proven experience in developing and implementing effective strategies, motivating teams, managing targets and budgets. You will be able to develop and build strong relationships with stakeholders at all levels, negotiate effectively and able to problem solve and think strategically, in addition to a good understanding of the fundraising regulatory environment.

Applications for this role are now closed.

Your privacy

We welcome your interest in working with us here at the Cystic Fibrosis Trust. In order to review and manage your application, we need to collect certain personal information about you through your application. We are committed to protecting your personal information and being transparent in what we do with it. 

We will only use your personal information as required to manage your application to work with us, or as required by applicable law or regulatory requirements.  

We do ask that you help us monitor our performance on equality by completing the accompanying Equal Opportunities Form which contains no identifiable personal information. Doing so is optional, and any information you provide through this form will be used to provide generalised aggregated reports. It will not affect your application in any way and is kept separately.

In the event your application is unsuccessful, we will retain your information for up to 6 months, before it is disposed of confidentially.  

For more detailed information on your rights and how we use any data you provide us, please see our privacy policy.

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.